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2 posters

    The girl who never ages

    Kitkat
    Kitkat
    Kitkat

    • Post n°1

    The girl who never ages Empty The girl who never ages

    Post by Kitkat Fri 23 Sep 2016, 14:11

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    Stardust
    Stardust
    Stardust

    Location : City of Light
    • Post n°2

    The girl who never ages Empty Re: The girl who never ages

    Post by Stardust Fri 04 Nov 2016, 17:12

    Very strange, isn't it, yet her DNA is normal as far as they can see.

    I wonder if the three sisters are at risk of having children with Syndrome X.

    I feel sorry for Brooke, it's obvious that sometimes she's very frustrated though she doesn't seem to have progressed much in other ways either, not just physically. Imagine if she had the mental age of a 16 year-old locked in the body of a 2-year old, that would be terrible for her.

    The family are wonderful but I wonder what will happen in the future if Brooke outlives them all, not just her parents but her sisters too.

    Is this a unique case world-wide? How could it have happened? There are a lot of questions that we cannot answer.
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    Stardust
    Stardust
    Stardust

    Location : City of Light
    • Post n°3

    The girl who never ages Empty Hayley Okines and Progeria

    Post by Stardust Mon 16 Jan 2017, 21:03

    This made me think of Hayley Okines who suffered the opposite disease, progeria, accelerated ageing. I used to receive her newsletter then it stopped coming and an internet search didn't provide an answer at the time, though I supposed perhaps she'd taken a turn for the worse. Anyway, I just Googled again and discovered she passed away on 2nd April 2015. That's nearly two years and I only just found out.

    She was very brave and did a lot of campaigning to make progeria known and collect funds for research into the disease.

    If you want to read more about Hayley and progeria, it's here:
    http://www.bbc.com/news/uk-england-sussex-32174131
    and here:
    http://www.bbc.com/news/uk-england-sussex-32309517
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