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Kitkat's KK Blog

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Re: Kitkat's KK Blog

Post by Feather on 7th November 2017, 14:03

Say Hi to Viv from me. It's lovely that you have her with you. It makes all the difference when you have company, someone to talk to. I would be there if I could.All the best.Myra.xxx.
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Re: Kitkat's KK Blog

Post by Whiskers on 9th November 2017, 20:25

Thinking of you KitKat.happyheart   I hope all is going well and you will soon be back home.  Take it easy for the next few weeks and dont overdue anything. Even if you feeling better outside, the inside takes a lot longer to heal.   hug
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Re: Kitkat's KK Blog

Post by Kitkat on 12th November 2017, 14:19

Got back home Friday evening. All seems to have gone well. My surgeon was a George Clooney look-alike I love you - all the nurses in there swooning over him  pirat and I'm pretty sure that not too many people would be able to say that they once had a pretty horrid experience in hospital, but the day after that they had George Clooney on their bed rubbing their tummy! happyheart Wink

The District Nurse has to come twice a day for the next 26 days to give me an injection (one morn / one eve) as apparently I was/am at risk of VTE.  surprised   Yes, I had to check it out ... but anyway sooooooooooo happy worst bit now all over.
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Re: Kitkat's KK Blog

Post by Feather on 12th November 2017, 16:50

i'm so relieved that it's all over and you are back home. Well done. Hope George didn't get you too excited.What's VTE?



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Re: Kitkat's KK Blog

Post by Kitkat on 12th November 2017, 23:13

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Re: Kitkat's KK Blog

Post by Kitkat on 18th November 2017, 10:29

The hospital phoned yesterday evening to tell me my results appointment (Tues, 21st Nov) has now been moved forward to Monday, 20th.  Not only is it the first one of the week, but also the first one of the day.  Been told my appointment is at 8:45 - the Department doors & Reception don't even open till 9:00.   Neutral   rock .

So, not sure whether this is a good sign or a bad one ...  e.g. Have they pushed me to the fore because there is bad news, which needs urgent follow-up attention(?); or Do they put the "good news" appointments first because they are over and done with quickly, not having to talk with other docs, have further tests done, or go through necessary further treatment arrangements, etc.  The nurse who phoned me was one I had spoken with at length at my pre-assessment appointment.  She did apologise, more than once, for the short notice - and said that I am first on the list so won't have to be hanging around waiting.

Ever the optimist, I've chosen to go with the latter. 
I also have a "feeling" that all is going to turn out well.
Have to mention at this point an incident that happened one day last week (can't remember which day it was now).
My friend was over and we were in the kitchen nattering, when we both heard a voice which seemed to be coming from the sitting room.(No-one else in the house at the time).  Went in to investigate - and found that the TV had turned itself on!  (has happened before on a number of occasions, but never when anyone else was around to witness it).  Not only had it turned itself on - but the programme that was showing was 'Medium' (fact-based TV series based around real-life medium, Alison Dubois) - and the scene that was showing was about someone called Cathy - who was visiting someone in hospital, standing by their bed and saying "You are going to get better, you're over the worst and will be out of here soon".
We obviously continued to watch the programme cyclops  and the person did indeed get better and was as right as rain not long afterwards.  Other similar "things" happened well into the rest of that evening - and my friend even joked at one stage about 'getting outa here and going home!'  Shocked ... at the same time acknowledging that she was quite fascinated to actually witness some of these 'happenings' (which I had of course spoken about in the past). cat
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Re: Kitkat's KK Blog

Post by Feather on 18th November 2017, 12:29

Wow, KK. That is mind boggling. How on earth could that happen? I wish it would happen to me but it never does no matter how much I want or need it.
You are right to be optimistic. It will likely be a routine thing. I hope you are gaining strength every day and being a good girl--not lifting things etc. As always, I'm thinking of you. xxx.



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Re: Kitkat's KK Blog

Post by Kitkat on 20th November 2017, 15:01

So much for being the first to be seen this morning.  11:45 I eventually got seen by the consultant - and it was well worth the wait.  He said he loves doing these type of consultations - when it is good news he's delivering.  In short:  All is well.  No need for Macmillan nurse, and no follow-up needed.
The official term was complex atypical endometrial hyperplasia.  All the baddies were got rid of  stickit , and 'most importantly', were caught and dealt with in good time.  There is no maverick travelling anywhere outside of the mapped route and everything is now healing up just as it should.
I got my discharge papers today. YESSSSS wine banana
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Re: Kitkat's KK Blog

Post by Whiskers on 20th November 2017, 20:23

Best news ever kk.  toast   I bet that's a gigantic relief for you.  You can take it easy now and relax and enjoy a stress-free recovery.  Just make sure you dont overdo the celebrations!
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Re: Kitkat's KK Blog

Post by Feather on 21st November 2017, 23:14

hug  hug   hug   My internet has been unavailable for two days but it's ok now---just like you, KK. Wonderful news. I'm so happy for you.Take care of yourself. xxxxxx.



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Re: Kitkat's KK Blog

Post by Jamboree on 27th November 2017, 04:51

Just caught up with this.
Wishing you a speedy recovery and good health.
Take care.
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Re: Kitkat's KK Blog

Post by Kitkat on 6th December 2017, 11:54

This morning is the last of my district nurse visits to give injection for VTE risk.  (28 in all, twice a day, morning and evening following the op).  It's not Warfarin (thank goodness! because I can still see the Warfarin pack up on the shelf in the barn of the farm, my Dad's homeplace back in Ireland - with its picture etched on my brain, of the big-whiskered black rat staring down at me!  Yes, as well as being a very effective rat poison, Warfarin is widely used in the NHS as a blood thinner medicine to ward of blood-clots causing strokes/embulisms etc ... for those who may be at risk especially after major surgery, etc ...), cos it seems I may have some reaction to Warfarin (hmmm ... I wonder if they're trying to tell me I have a similar constitution to a rat! ...)  Well, that aside, it seems that Tramadol (my main regular painkiller) and Warfarin don't mix, so that's probably the reason -
but anyway, something similar is used in the injection they've been giving me, also a blood thinner, called Clexane.

I reckon that by the end of this week, I should be completely back to 'normal' and can get back into my little car (something that I miss desperately) and be whizzing around the place (although this time of year I tend to avoid the roads and shops etc, as it's always a nightmare scenario with all the Christmas Chaos and everything that goes with it).  During my time of incarceration, I opened an account with Asda for online shopping delivery.  You need to have a minimum of £40 worth of shopping and they will deliver it all to your door - or in fact right into your kitchen and make sure everything is waist level etc if that is your requirement).  I will continue with this fabulous facility, can get all my Christmas needs etc through them - not only the bending/lifting/carrying problem eliminated, but also the crazy traffic, rush-hours, school runs, crowds of people, screaming kids, folk bumping into you, noise, brain-draining piped music, queuing at check-outs, humping stuff in and out of car, etc etc etc - all eliminated.  Definitely another good thing that's come out of all of this (apart from getting the "all-clear" post-op news!).  Turns out that the majority of the nurses that I had visiting me also are subscribed to this home delivery service (not necessarily with Asda, but Tesco, Sainsbury's and all the major chains and competitors do it as well) so, for families with young kids, people who live on their own, people with mobility or other illness restrictions etc, for all sorts of reasons - it really is a kind of a life-saver. A1
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Re: Kitkat's KK Blog

Post by Whiskers on 6th December 2017, 19:27

Kitkat wrote: bending/lifting/carrying problem eliminated, but also the crazy traffic, rush-hours, school runs, crowds of people, screaming kids, folk bumping into you, noise, brain-draining piped music, queuing at check-outs, humping stuff in and out of car, etc etc etc

surprised   I read that first as "humping staff in and out of car" .....  pirat giggle  sidestep

Glad to see you getting back to "normal" kk.  "right as rain" as told to you in your TV 'message' Wink  and in good time for Christmas too.  YESSSSS
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Re: Kitkat's KK Blog

Post by Kitkat on 15th February 2018, 17:07

Been a while since I posted in here - I've had to stay away for a time from all the things that I love doing, because of flamin' migraines ... Crying or Very sad .. not just the headache - I can put up with that and do something about it, but a particularly debilitating type of migraine with aura - anyone else who 'suffers' from such will know just what I mean. hairpull   I call it my 'jumping jigsaw puzzle eye' (moving and expanding zigzag lines) affecting and restricting my vision over a number of days, to the extent where, when it gets really bad, as well as the banging headaches, I cannot read properly because the words are jumping up and down on the page (or screen), so can't use my phone (I do have a 'Talk to Text' converter, but even using that is restricted because it has to be set up using a few buttons - and even just talking on the phone - or anywhere for that matter, requires concentration which just makes the headache part worse, so can't drive either - even though I may be feeling ok to start with, because the aura thing can occur at any time during a bad period of migraine, which can last over a couple of weeks. During that time, the only way to stave off these headaches and all that go with them is to lie in a quiet, darkened room.  Bright lights can trigger a bout (driving at night-time is to be avoided at these times), anything that requires concentration ... also certain dietary things can set them off, like coffee, cheese, chocolate, smoking ... again, all the things that I enjoy ....  hanged(my new 'George Clooney' coffee machine (Christmas pressie) can probably be blamed as one of the major culprits at this particular time  pirat) ...

So, been feeling right (uncharacteristically) sorry for meself this past coupla weeks.  *Touch wood*, it seems to have run its course now, as I've at least been able to get this post off without mishap :thumb: , so hopefully should be able to start living again with some sort of semblance of return to normality my usual non-moany, cheery, optimistic self. Wink
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Re: Kitkat's KK Blog

Post by Jamboree on 15th February 2018, 19:48

Kitkat wrote:anyone else who 'suffers' from such will know just what I mean. hairpull

Only too well.  catlick

I swear by peppermint oil and lavender oil.  Also, just recently discovered ginger works wonders for the nausea!
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Re: Kitkat's KK Blog

Post by Kitkat on 15th February 2018, 21:36

Jamboree wrote:
I swear by peppermint oil and lavender oil.  Also, just recently discovered ginger works wonders for the nausea!

Thanks, Jamboree. Smile   I have peppermint tea (all sorts of mint infusion teas, actually) which I find beneficial for certain ailments, indigestion and tummy stuff - and now that you have mentioned it, I do remember hearing a long time ago how inhaling peppermint oil is supposed to be a good remedy for headache!  I must look further into that.

The lavender oil I already have.  I put a few drops in a small amount of water in this little electronic candle thing, which  heats up and blows out into the room.  I used to use it quite a lot, but found out that it can have some not very nice side effects if, for instance, you regularly take painkillers, which I do. Depending on the strength and what it interacts with, it can actually cause allergic reactions, nausea, headache, chills or vomiting in some cases!  You're only apparently supposed to put a few drops into the water and the little bottle should last for years, even if you use it every day.  Well I was putting in about 10-12 drops into the container before it was pointed out to me!  You have to be so careful to check out all the ins and outs, pros & cons with these things.
For example, I found out some years back that I was unwittingly causing terrible suffering to my two cats over a long-term basis, because I would always havea vase of lilies in the room - I loved the heady scent that they emitted especially when the flowers opened up in the evenings.  
I discovered - through the old Spiritlove forum actually - someone sent me a link which said that lilies can actually be fatal to cats! http://www.noliliesforcats.com/faq1.pml
Members of the Lilium and Hermerocallis genera are toxic to cats. ... All parts of the lily - including the stem, leaves, petals, stamens and pollen - are poisonous to cats. Even minor exposures (cat chewing on a leaf or getting pollen on his or her haircoat or whiskers) can be fatal.
Both cats had been suffering over a long period of time because of this! I just happened to mention in a post like this on the SL forum how the pair of them had both been having bouts of sneezing which always seemed to start up in the evenings. At the same time, I was getting loads of headaches - worse in the evening time ... Seems the lilies were the cause there also ...
I of course since checked out and cross-referenced that link and found it to be accurate!
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Migraine is more than just a headache

Post by Kitkat on 11th September 2018, 10:55

(Copied from the Health & Environment forum)
https://krazykats.forumotion.co.uk/t1107-migraine-is-more-than-just-a-headache

'New drug works when others fail, researchers say'
Erenumab is a monthly injection that might soon be offered to patients on the NHS if the cost can be justified.
http://www.bbc.co.uk/news/health-43781227
Migraine is very common - it affects one in seven British people - and can be hard to stop.
The severe throbbing pain can last for hours or days on end, making it difficult to work, rest and sleep.
Some people get nauseous and sick with it. Others also get an aura - accompanying visual symptoms, such as seeing colourful shapes or experiencing tunnel vision or blind spots.

Rachel Walls, 37, from the West Midlands, has had migraines since she was 17. For the past two decades she has tried lots of different preventive medications and alternative therapies with no success.
"I get a migraine with aura so it affects my eyesight too," she says. "I see cells floating across my vision and I find smells and strong light really difficult to deal with.
"The pain is horrible. It's like having your skull crushed. You can't do anything else - just lie in a dark room and wait for it to go, and it can last for days."
She relies on strong painkillers during these attacks, which she says is unpleasant.

Every now and then we are hit with sensational news such as the one in the headline above, where researchers claim to have hit upon a 'wonder drug' - in this case Erenumab - still in testing phase,purported to be 'a new migraine medication - one of the first bespoke drugs for decades - which appears to work well even when others have failed'.

Erenumab is a monthly injection that might soon be offered to patients on the NHS if the cost can be justified.

However, as the report itself states - 'Finally, a medication that is designed for migraine' - and yet, up until now, no-one has really been able to pinpoint the cause of the migraine that so many people seem to suffer from. This new drug is apparently an antibody designed to block a receptor thought to be responsible for transmitting to the brain the pain signals associated with migraine.  That's not getting at the cause of the migraine ... which may well differ between individuals anyway.  Blocking out the pain is not treating the cause!

Like Rachel Walls, whose symptoms are detailed above, I too have experienced similar migraine with aura episodes on and off over many years. These episodes can last for anything from an hour up to a week, depending on the severity.
Just recently, after a long period free from any migraine episodes, I was suddenly hit with the worst bout that I had ever experienced before in my life that I could remember.  These episodes were occurring daily and constantly over a number of days.  The headaches were totally unbearable and did not abate at night time, and left me unable to do ANY of the normal everyday things; my vision was badly affected because of what I have to call my 'jigsaw puzzle eye' - the constant moving and expanding zigzag lines and tunnel vision, which meant I could not read, as the words would be blanked out in places on page or screen (tv/computer/phone etc), could not drive, could neither text nor speak with anyone on the phone - because as well as the sight disruption - all my senses were exaggerated to the highest peaks; taste - I could taste, ultra-strongly every single ingredient that went to make up a slice of bread, even water was unpalatable to me, as I could actually decipher various 'items' in a tiny sip of water from the tap (chlorine, perhaps? - and whatever else may be picked up along its journey to the tap); if there was a speck of pepper, say, or a coffee bean or even a dust particle, over in the far corner of a room, I could detect it by smell - and so strongly that it would be nauseating; all sounds were hugely exaggerated, even the birds tweeting turned into a horrendous din! A whisper would be a screeching shout, traffic was a roar everywhere, and I could not cope with even just simple chit-chat conversation.
Couldn't eat, couldn't sleep - constant horrendous stabbing headache was not eased with paracetamol (even though I already take regularly the strongest painkiller there is for my other ailments - they had no affect on these headaches).  I was also experiencing vertigo at this time, with light-headedness and dizzy spells even while lying down and not moving.
Because my sense of smell was so exaggerated, I had noticed too that whenever I walked into the kitchen, a particular smell hit me with such force that it actually felt like a blow to the head ...  it was a smell that I couldn't quite decipher, sort of chemically ... I couldn't locate where it was originating from.  
Then ... on one of the worst days ever, when I actually found myself in tears with the awful pain, I was in the kitchen.  At the far end of the room was a glass bowl with some apples and oranges in it.  I noticed that one of the oranges right down the bottom of the bowl was covered in a greeny-bluey mould - Penicillium mould!

Penicillium

Penicillium species: the mould that saved millions of lives

Penicillium is a group (Genus) of moulds found everywhere world-wide. It is the mould that saved millions of lives by producing the first ever known modern antibiotic, the penicillin. The discovery of penicillin from the fungus Penicillium chrysogenum (then known as Penicillium notatum) by Sir Alexander Fleming in 1928, perfected the treatment of bacterial infections.

Penicillium causes food spoilage, colonizes leather objects and is an indicator organism for dampness indoors. Some species are known to produce toxic compounds (mycotoxins). The spores can trigger allergic reactions in individuals sensitive to mould. Therefore, the health of occupants may be adversely affected in an environment that has an amplification of Penicillium.

I have a known extreme allergy to Penicillin! - as had my mother before me.

I had obviously been breathing in these penicillium spores all the time of the headaches and stuff.  As soon as the source was [swiftly!] got rid of, the migraines and all that went with them - disappeared - completely.  So there you go...  this particular 'wonder drug', had I been availing of it, would not have gotten rid of what I had been suffering from - 'dulling the receptors to my brain which told me I felt pain' would not have addressed the problem, and had I not discovered the source (the actual originating cause), it could well have escalated into something far worse - as all the reports mention some very serious possible effects to organs (liver/kidneys) from the mycotoxins.




Some related links:-

•  Hidden Risks: Penicillium Mold In The Indoor Environment
•  Penicillium - Mold & Bacteria Consulting Laboratories
•  Penicillium Species As Indoor Air Contaminants
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Kitkat
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Re: Kitkat's KK Blog

Post by Kitkat on 11th September 2018, 11:07

See, this is why I cannot afford to ever 'rest on my laurels'.  It's the reason I'm constantly worried now when any new ailment appears (and there have been plenty of those over the years following from my 2  cancer diagnoses).  I'm always a bit anxious too that a secondary cancer may be 'lurking' somewhere and not discovered till it's too late - which is what happened with my mother, despite numerous tests done here, there and everywhere - the reason it was too late was because it had been hidden behind the pancreas, and so didn't show up on any of the scans.

Olivia Newton-John has just been diagnosed for a third time, having had breast cancer twice and recovered from each treatment.  I see that she is sanctioning the controversial cannabis oil treatment which is not yet freely available in this country.  Hopefully this will soon be rectified.


Singer and actress Olivia Newton-John has opened up about a third diagnosis for cancer, saying she believed she would "win over it".

The Grease star, 69, told Australian TV show Sunday Night she was now using medicinal marijuana and other natural remedies.
Newton-John survived her initial breast cancer diagnosis in 1992 but revealed that it had returned in 2013.
A third diagnosis, of a tumour in the lower back, was made last year.

The new diagnosis is stage 4 breast cancer that has metastasized to the spine.
In the emotional interview on Sunday Night, she said: "I'm one of millions in this fight. I shouldn't say fight... in this journey.
"A lot of people see it as a fight, and wherever you choose to see it, that's your prerogative. I see it as part of my mission."
She said the natural treatments were "doing really well", although radiation therapy was also involved.
"I believe I will win over it and that's my goal."
Newton-John called on Australia to adopt the laws of the US state where she lives, California, and allow the medicinal use of marijuana.
"My dream is that, in Australia soon, it will be available to all the cancer patients and people going through cancer that causes pain," she said.
The four-time Grammy award winner admitted to moments of despair but said she had "an incredible career" and "nothing to complain about".
After surviving her cancer diagnosis in 1992, Newton-John became a prominent campaigner, setting up the Olivia Newton-John Cancer and Wellness research centre in Melbourne.
https://www.bbc.co.uk/news/entertainment-arts-45479702

    Current date/time is 19th October 2018, 16:37