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Kitkat
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Re: Kitkat's KK Blog

Post by Kitkat on Tue 29 Nov 2016 - 15:50

This post is just copy and paste from the same text I have posted on our family forum - and should be self-explanatory:


Today one of the worst days in a long long time.  Pain everywhere - real burning pain, especially in lower back. Cant sit stand lie widout huge discomfort.  Have doubled my painkillers (is ok to do that cos prescription is for 1 or 2 twice a day(they last for 12hours) but I usually only take the 1 every 12 hours).  Anyway the extra has made absolutely no difference to this current pain - hoping it will help with sleep tho.  Thats part of the problem though, wid the extra painkiller it helped sleep last night, I actually slept for 14 hours! Obviously needed that sleep, but meant pain was acutely worse when I woke up cos had been lying in same position for all that time - also meant late with morning tablets.  Pain is just like it was at the very beginning - only worse now cos the extra hands pain as well (and the painkillers dont go anywhere near helping that anyway cos its a different type of pain (related to the Diabetes afaik). hard typing this today. If i keep my hands still at a certain position its bearable - but the slightest little deviation from that can be excruciating.
Wont be able to go to Spook night tonight.   Even forgetting the pain and discomfort, the extra dose painkillers makes extra dozy, so not able to drive, let alone sit for an hour when get there.

I will try the morphine tonight and see how am tomorrow.  If still the same tomorrow I won't be able to go wid you to collect your new glasses Kev.  If I remember correctly, you due to collect them on the 30th?  Will be in touch tomorrow anyhow to let you know one way or other.

(The voice to text that I use on my phone now for texting messages is just great - wid the hands issue. Just speak into the phone and it types it for you. Even better than using a stylus.  I trying to find out if there's a way i can incorporate that into posting here on the forum too - especially for days like today). Crying or Very sad
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Re: Kitkat's KK Blog

Post by Feather on Tue 29 Nov 2016 - 17:47

I'm really sorry to hear about your pain , kk.I am having a bad day too and yesterday. Lot of tears and migraine both days. Am thinking I'll have to go to the doctor again. Have lost my appetite and migraines scare me which makes my nervous state so much worse.  My memory is bad after migraine too. I just want to sleep and forget about everything but going to bed doesn't guarantee  sleep.



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Re: Kitkat's KK Blog

Post by Stardust on Tue 29 Nov 2016 - 20:19

I'm so sorry to hear you're in such pain Kitkat, and you too Feather with your migraines, I so wish I could do something to help you two.

I hope tomorrow will find you both feeling a little better.

Sending love. happyheart



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Re: Kitkat's KK Blog

Post by Feather on Tue 29 Nov 2016 - 21:24

Thank you, Stardust. We'll see what the next few days bring.xxx.



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Re: Kitkat's KK Blog

Post by Whiskers on Tue 29 Nov 2016 - 23:09

Sorry you are both suffering KitKat and Feather. xx
Same as Stardust, I just wish there was something I could do to help and hope you both get better soon. happyheart
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Re: Kitkat's KK Blog

Post by Kitkat on Thu 1 Dec 2016 - 14:12

Well, for my part anyway, it does actually help quite a bit just writing it all down here.
I'm not one to be talking about my pains and woes to anyone, especially not with friends and family. People have enough of their own problems to be dealing with. Even with the GP I find it a chore to be going over all the ins and outs, etc, so for me at least, it's good to get writing down everything and (1) get it all out of my head and just get on with life; and (2) good to keep a record, of dates and occurrences etc, as so often these are the questions that the various specialists need to know.

So ...

I did manage to get over to my cousin's and go with him to collect his new glasses. (He suffering with his own mobility and medical problems at the moment and doesn't drive, so the car comes in handy at these times). Didn't stay too long as morphine was obviously still working (deadening the pain, but also meant very sleepy. I planned to go to bed straight after Coronation Street, but actually dropped off in the middle of watching it - with cup of tea in hand! Jerked awake by mug upending and tea pouring all over me! Went straight to bed then and slept for 12 hours - but when I woke up this morning the lower back pain was excruciating again and very debilitating - unable to sit, stand, lie without immense discomfort. (Being in same position for such a length of time obviously exacerbated it again).
Took some more morphine this morning (just a teaspoonful is all it takes - and within 20 minutes it starts working, and it works well to ease the pain away - but of course makes sleepy again, so I won't be driving anywhere today.
I'm thinking now that it might be the recent MRI that I had (19th November) that has caused this latest flare-up (having to lie on my back and stay really still for 40 mins etc).
I already have doc appointment for Wednesday so hopefully should have the result of that MRI then also.
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Re: Kitkat's KK Blog

Post by Kitkat on Wed 7 Dec 2016 - 18:52

@Kitkat wrote:Weird letter from my GP today.  Not sure what to make of it at all ...

It says the report from the Oncologist dated 14.10.16 is back.  Please phone to make a routine appointment to see a doctor to discuss the report.

wtfcat   I can only assume that this is referring to that appointment I had way back on 5th September!  timeglass (mentioned in my last post here) -  Can't think what else it would be.

And what the hell is a "routine appointment" anyway?!!   sigh

Well, you think it couldn't get any worse, but ... surprise, surprise .... scared

Just back from that 'routine appointment' with the GP.  Brought the letter with me, as requested. 
The GP I saw can see no record whatsoever of any '14th October Oncology report' mentioned in the letter sent to me from GP surgery!.  In fact, the last oncology communication on my file is from back in March!  So, nothing about the attendance at Charing Cross to investigate "an abnnormality" - which appointment turned out to be an administrative mistake, along with 3 others.  Apologies offered on the day, and was told another appointment would be sent to me by letter.  That letter arrived with an appointment date for 5th September - at a different hospital, this time in Paddington, where I was re-examined, mammogram and scan - only to be told that nothing to worry about; the 'mass' that they had been concerned about turned out to be scar tissue from first cancer treatment back in 2004!
So, not only has my GP surgery got no record of these visits and procedures, but they are asking me to come in about a 'ghost report' covering an appointment in October - which never happened!!

GRRRrrrr!!!!

While I was there I asked if the report had come through re the MRI that I had in November - in yet a different hospital (Central Middlesex).  Yes, this report had come through - and on that it states that I should see GP for a non-urgent appointment - but till now of course GP had not notified me of this!  I requested a copy of that report for my own files and it was given to me.  Arrangements being made for me to have an epidural steroid injection in that regard - which is just a temporary pain relief (from what I've heard it generally lasts about 3 months if indeed it works for the individual - doesn't for everyone).  Not sure that I really want to have this, what with side effects etc, but I said yes anyway - in the absence of nothing else.
According to the report, there is no compression of the spinal chord, but there is "moderately severe" spondylotic change with several of the discs.  shrug  This is also what's causing the now continuous fierce pain in both my hands (and the numbness of the hands on waking up).


On a brighter note... received my first Christmas card today - from our Pixie. Very Happy
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Re: Kitkat's KK Blog

Post by Feather on Wed 7 Dec 2016 - 22:57

That's enough to drive you round the twist, kk. Well---it would me but you're made of sterner stuff.
I remember Pixie. We didn't always see eye to eye especially about religion but I do hope she's ok and still holding a torch for the footballer, Steven Gerard. My 1st Christmas card arrived last week---from New Zealand.Mine are all written but not yet posted. Love ya.xx.



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Re: Kitkat's KK Blog

Post by Jamboree on Wed 14 Dec 2016 - 4:33

Birthday  Happy birthday for today, Kitkat.

The birthday notice says you are all of Sweet Sixteen ??  surprised   You seem older than your years.  If I may say so, you sound very mature for a 16-year old teenager. Very Happy
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Re: Kitkat's KK Blog

Post by Kitkat on Wed 14 Dec 2016 - 9:29

@Jamboree wrote:Birthday  Happy birthday for today, Kitkat.

The birthday notice says you are all of Sweet Sixteen ??  surprised   You seem older than your years.  If I may say so, you sound very mature for a 16-year old teenager. Very Happy

Thanks, Jamboree. I love you    Oh yes, I've always been a bit before my time. innocent  I guess you might say I'm maturing slowly, but surely - like a fine wine, or maybe an old cheese ... cheesy
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Re: Kitkat's KK Blog

Post by Feather on Wed 14 Dec 2016 - 9:56



Hope you have a lovely day, kk.
Much love.
Feather.xxxxxx.



I'D RATHER PURR THAN HISS!  
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Re: Kitkat's KK Blog

Post by Kitkat on Wed 14 Dec 2016 - 10:11

Thanks Feather. Smile   That chocolate cakes looks good enough to eat right now!  I'm bringing it in to the Chatroom with me - will be in there for another while, so if anyone cares to come in and join me in, say, the next hour - I will share my birthday cake with you - and maybe even crack open a bottle of something nice .....

(In case you're not sure how to access the Chatroom ...  See down the bottom of the board under the heading 'Chatroom' - it should tell you there if anyone is in there, it will list out the names of those who are already inside.)  So you just click into the link underneath which says Join the Chat - and once inside it will say 'You are not connected' - but all you have to do is then click into the 'Login' sign at top right-hand corner of the box and you will be in there with everyone else.

If no-one else is in there when you go in - if you click into where it says 'Archives' you will be able to read all the past conversations that have been made in the Chatbox.
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Re: Kitkat's KK Blog

Post by Kitkat on Wed 14 Dec 2016 - 10:29

I have brought the birthday cake into the Chatroom, but no-one is in there at the moment to share it, so might hafta demolish it all myself! Just about to crack open a bottle ...
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Re: Kitkat's KK Blog

Post by Stardust on Wed 14 Dec 2016 - 11:49

Bon Anniversaire, Kitkat. purr 





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Re: Kitkat's KK Blog

Post by Kitkat on Thu 15 Dec 2016 - 0:21

Thankyou, Stardust :thanks:  and thanks to everyone who sent me birthday wishes.  happyheart
(I just LOVE birthdays!) yay

It's all over now - but I'm still celebrating ..........

This is the card that my two lovely nieces sent me.  They are both in Indonesia at the moment.  (One lives there permanently and the other one is visiting for Christmas):

giggle   I luvvit!

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Re: Kitkat's KK Blog

Post by Feather on Thu 15 Dec 2016 - 10:57

All I can say is WOW!



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You sexy thing ...

Post by Kitkat on Sun 8 Jan 2017 - 13:20

Someone stopped me on the street yesterday, to tell me that there was something very sexy about me! .... Was it my body? No.  My eyes?  Hair?  Walk? (getting warmer) ....   According to my street-stopper-stranger, I have a very sexy WALKING STICK!    Neutral What a Face 

  Well, that's a first .....
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Re: Kitkat's KK Blog

Post by Stardust on Sun 8 Jan 2017 - 14:12

giggle
First time I've heard of a walking stick fetish, unless it's something to do with the shape of the handle part. There are some weird people about. So what did you answer to that, Kitkat?



Be grateful for even the smallest thing, blessings come in many disguises.
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Re: Kitkat's KK Blog

Post by lar-lar on Fri 24 Mar 2017 - 18:58

I'm often in email contact with Pixie. 

Since it's a public blog - here's her. https://insidetherainbowblog.wordpress.com/2017/03/22/late-autistic-diagnosis/
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The Children's Newspaper

Post by Kitkat on Sat 3 Jun 2017 - 17:46

I came across this while sorting through LAL (checking & updating broken links, missing pics etc):

https://lightafterlife.forumotion.com/t407-the-children-s-newspaper

and have included it here as a reminder to myself to continue with my research - when I have some spare time to dedicate there; definitely not at the moment, but I will get there, eventually ....
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Re: Kitkat's KK Blog

Post by Kitkat on Mon 12 Jun 2017 - 11:22

Continuing on in the same vein as Post No. 332 above ......


My phone rang q while ago and as it was ringing it said "Hammersmith Hospital calling".
I answered it with some trepidation because I thought Hammersmith Hospital calling me(?) Got to be bad news... 
My immediate thought was my cousin who's been a frequent visitor there of late! ...
maybe been rushed into hospital again(?) ... or worse(?)  

Anyhow, it was an automated message "[my name] only".  If you are [my name] press 1 on your keypad.  A trembling finger pressed number 1 ... and waited.

Took a while then to figure out what the message was - (continued in automatic robot style).  Had to play it back about 6 times before ascertaining that it was a reminder for [my name] (if you are not [my name] press 2).. about appointment at [a different hospital but part of the same Health Authority] on Monday 19th June at 10:10. 
To confirm you are attending press [woteva number]... If you want to change press [blah].

After the 6 or 7th attempt at listening to the message, I pressed blah - and got through immediately to a human!  Said I'm being reminded about an appointment that I have no knowledge of whatsoever and not a clue what it's about!
She said the appointment is at Neurosurgery.  Your original appointment there was on 23 October [yes], but this has now been brought forward based on the results of your recent tests. (that being the EMG/Carpal Tunnel day - I am STILL waiting for the results of that, as things have got a lot worse since then, but I was putting off making an appt with my GP until that result comes through!)
Well, apparently the result IS out (but not received by me - or GP? cos they surely would have notified me...)

So, I guess I'll find out next Monday. One thing I do know... it for sure won't be good news.
Might as well try making an appointment with my GP now, cos it'll be at least 2 weeks before there's a vacant slot anyway. 


(and now we've got Michael Gove back in to really finish off the NHS... what's left of it ......) surprised
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Re: Kitkat's KK Blog

Post by Stardust on Mon 12 Jun 2017 - 18:11

Those robot phone reply systems are enough to turn anyone into a gabbling wreck. hairpull 

I hope you don't wait two weeks before your GP has a free spot in his agenda, Kitkat, there's nothing worse than waiting and imagining all sorts.

I'd offer you a comforting cup of strong tea or a stiff brandy, but you'll have to make do with a virtual hug sent from afar.

Thinking of you. catlick

happyheart



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Re: Kitkat's KK Blog

Post by Kitkat on Mon 19 Jun 2017 - 23:06

Well, I have been discharged from Neurosurgery, won't be needing any steroid injection or surgery in that department.  Seems I have two separate problems: 

Carpal Tunnel in the right hand/wrist area - for which I need to get something like this 
(I'm hoping there might be a choice of different colours ... Suspect  )

And the left side is something else - to do with the ulnar nerve (Cubital Tunnel Syndrome) surprised 

Cubital tunnel syndrome is a condition brought on by increased pressure on the ulnar nerve at the elbow. Cubital tunnel syndrome symptoms usually include pain, numbness, and/or tingling. The numbness or tingling most often occurs in the ring and little fingers. The symptoms are usually felt when there is pressure on the nerve, such as sitting with the elbow on an arm rest, or with repetitive elbow bending and straightening. Often times immobilization of the elbow is required to treat cubital tunnel syndrome.
For that I'm going to have to get something out of this sort of range (to be worn day and night to keep it immobilised!)  Neutral  Again, the range of colour choice in the available designs appears somewhat limited (black or ... black)  What a Face pirat   https://www.braceability.com/cubital-tunnel-splint

Not sure for how long these contraptions are going to be necessary ....  but looks as though I'll be going around for a while anyway looking like something that's escaped out of Star Wars .... pale
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Kitkat
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Internet connection ups and downs ...

Post by Kitkat on Sat 12 Aug 2017 - 19:41

My internet (ethernet) has been up-down-up-down over the last few days. 
Thought at first it was something that I had done, but on checking the problem online today, it's some kinda cold comfort to find that it's a fault with the provider and affecting loads of other people too.

They seem to be blaming Virgin cables (though what they've got to do with Talk-Talk I don't know.  They don't give any warning or details out, but there's some sort of rumour going round that a load of cables have been affected somewhere by rats!!!!)  Huh?!!!  Whether that's true or not, there is some major problem causing grief for loadsa people.
Just going by these comments alone - for London, made in the last few hours from Talk-Talk customers - and that's just a tiny fraction of the problem, which has been ongoing like this for days non-stop now:

http://downdetector.co.uk/problems/talktalk

(Even trying to type & post this has taken me ages, with up-down happening the whole time - and 4 more complaints have been posted even since I started typing this!) thumbdown
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Kitkat
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Re: Kitkat's KK Blog

Post by Kitkat on Wed 6 Sep 2017 - 18:59

It's that "Here we go again" time - Again! ...........   bawl

There's another expression that goes something like "Third time lucky" - but somehow I don't think this quite fits my situation.   I swore the first time round I never, ever wanted to go through that nightmare hysteroscopy procedure again.  The first time (about 7 years ago) I had been anesthetised for the procedure.  When I came to I was writhing in agonizing pain like I've never felt before; the only reason I didn't wriggle right off and out of the bed was because I had a wire attaching me to the drip above my head.  The indescribable pain was coming in waves, while a gathering of docs and nurses surrounded my bed, pouring all sorts of different mixtures into the drip.  At one stage the sister asked "How is the pain now?"  I said I haven't had an attack since the last time you asked me.  She said "that's good - it's been a whole 10 minutes pain-free then" - so whatever had last gone into that drip then was working.  That procedure had long-term, still-existing after effects on me and it wasn't long after that, that I was diagnosed with the chronic degenerative disc problems which still exist to this day.  They reckoned it must've been the position I was lying in while anesthetized which caused the pain.  I secretly think there's more to it - something happened while I was under which they didn't want to, nor will they ever, admit to ...  Well, you hear of all these stories of scissors and instruments etc being left inside a patient after they've been sewn back up and stuff - and these things really do happen.

I am also fiercely allergic to Penicillin, and Cyclizine (an anti-emetic which without warning they pierced into the back of my hand after one of my cancer ops back in 2009 (because I had mentioned that I thought I was going to be sick) - and to which I had the most frightening reaction,and seemingly flatlined in the process! and spooky happenings where the machine turned itself off altogether and while all this was happening, both my visitors' mobile phones rang (my brother and a friend).  Both their phones had been turned off when they came in to the hospital - in fact my friend had to go rooting in her bag which was at the foot of my bed to answer hers and when she did - there was no-one there.  Meantime my brother went out to the corridor to answer his (which was ringing simultaneously - and again, his had been switched off also - they are both adamant of that fact).  At first all he got was crackling ... he said 'hello' twice and still just crackling - then a woman's voice said 'hello!' and then it just cut off.
Neither of their phones afterwards showed any trace of these calls having been made ...  Spooky, huh?
My Oncologist later had put down in his notes that I had had "an out-of-body experience"!
Oops - I am digressing .....

The second hysteroscopy occurred about 2 years ago, and this time I had to have it with NO anesthetic, not even local!  Without going into too much detail - it was a horrendous experience, and instead of me going home straight afterwards on that day (it was supposed to have been a purely regular 'exploratory procedure' done in Outpatients) - they had to arrange for a bed to be sent down from the Ward and I was wheeled up on it and into the Ward where I had to remain for the rest of the day after they gave me something to help me sleep and ease the searing pain which again was coming in wave attacks, as well as being extremely nauseous and wanting to be sick.  I was out like a log after that for hours.

Anyhow, the long and the short of it is - after a scan today and then seeing the Consultant, he has said I am to have   ANOTHER hysteroscopy - without anesthetic!  He actually wanted me to have it there and then, but I had to go because I had driven there and my parking max time was almost at an end.  So, instead now they arranging for me to have it done in theatre - without anesthetic, but with anesthetists standing by in case needed!  scared
I should get this appointment date in about 2weeks' time, he reckons.  Back in The Waiting Game .................

To be continued (no doubt) ...........  

(He told me outright - because of my breast cancer history, he is anxious to perform this exploratory procedure (of the uterus) which is predominantly to check for (and hopefully eliminate) secondary cancer.  (He also mentioned something about Tamoxifen -which of course I declined after my last breast cancer op in 2009) ....  I am apparently severely low in Oestrogen and the Tamoxifen would normally be given to alleviate this, but because of my other multiple medical issues, this would not be the right course for me - and it seems (as my Oncologist has already said some time back) I did the right thing in declining it.  (His actual words to the Macmillan nurse at the time were "Thank God she did decline it").
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Re: Kitkat's KK Blog

Post by Stardust on Fri 8 Sep 2017 - 15:29

I'm trembling in my boots after reading that and I'm not the one going through it.

Seems you have spirits around you anyhow, Kitkat, and though you're still feeling the pain, it's some comfort to know that they're there with you.

Thinking of you. catlick



Be grateful for even the smallest thing, blessings come in many disguises.

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