KRAZY KATS

Welcome to Krazy Kats - a friendly informal online community discussing life issues that we care about. Open 24/7 for chat & chill. Come and join us!


The Video of the Week currently showing on LAL Portal Page is: 'Reality and the Extended Mind'


Kitkat's KK Blog

Share

Whiskers
VIP Member
VIP Member

Posts : 1447
Join date : 2011-04-02

Re: Kitkat's KK Blog

Post by Whiskers on Sun 20 Sep 2015, 10:35

Any news about the lowlife who stole your parking badge kk? I dont suppose they will ever find who took it and broke into your car. It will be sold on to someone else now who will be using it far away from the scene of the crime. Did you found your driving license after? You dont need that on top of everything else!
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Thu 24 Sep 2015, 12:48

Whiskers wrote:Any news about the lowlife who stole your parking badge kk?  I dont suppose they will ever find who took it and broke into your car.  It will be sold on to someone else now who will be using it far away from the scene of the crime.  Did you found your driving license after? You dont need that on top of everything else!

I have received a replacement badge which I now have chained to the middle of the dashboard - well ribboned to  it, to be more precise.  The smashed window has been replaced and I am 'driveable' again.
I have applied for a replacement Driving Licence (cost me £20) and still await that.  When I reported it to the DVLA, they confirmed that it is still valid and I didn't need to provide a new photo when applying for replacement. After the initial shock, I realised and remembered that I had [only recently!] put my licence inside the holder that was displaying the Blue Badge.  I do realise now that that was a very unwise and stupid thing to do.  judge   I routinely used to carry my licence with me, but had only lately got a new pretty holder for the badge (and clock card) - it had pictures of cats on it. rabbit  At the time I had thought it was the best place to keep my licence also (hidden inside, obviously) as it would always be to hand if needed - never dreaming that the Badge holder itself would be stolen! pale   The guy in the Post Office told me that there has apparently been a spate of similar thefts from cars around this whole area, where the only thing that was taken was the Blue Badge.
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Fri 02 Oct 2015, 10:51

So, the guys are here today to sort out the ceiling.  A bigger job than was expected.  They thought they would be coming simply to plaster - but now it transpires the whole ceiling has got to come down! and be replaced with a new [reinforced] ceiling.  Gonna take a few more days before it's all sorted.  A bit of a "belly" has formed in the ceiling over the years (with the previous leaks and stuff) and apparently it's a fraction away from the main joist (or summat), so if the present situation is left without rectification there is a [tiny, I think - but they seem to think "strong"] possibility that the ceiling could collapse one day and fall down on top of me! scared chair  - especially as over time when the heating is on apparently this could escalate the situation ... they did explain, but it's quite honestly beyond me.  I just wish these guys had been around when 2 or 3 years ago I had the first leak up there and at that time my main reported worry was that the ceiling was going to fall down - and the idiots that did [eventually] come to "sort it out" assured me unequivocally that there was absolutely no chance of that happening!

At this point in time there is a hole in the ceiling  (deliberately created as an exploratory doorway up there to investigate - resulting in this latest decision).  Furniture and stuff has been moved out of the way, out into the garden - along with their gear and tools etc, dust covers all over the place, and they have assured me that everything will be put back exactly in place when they leave this evening.  Today is boarding. 
Then there will be another day fixed to come back and plaster - and then painting etc on another day again.  hanged
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Fri 02 Oct 2015, 12:42

update   GRRRRRrrrrrr!!!!  Now they tell me it's not as bad as they thought initially ... the ceiling doesn't need to be replaced after all.  There is no worry about the joist - it's apparently on a grid system  Question , so the job can actually be completed today after all ...  they've just got some extra work to do now, repairing and patching up the unnecessary hole that they made in the first place  angry  before the real stuff can be tackled.  hairpull  - and bringing back all the stuff that they got out of the way -
and making sure it's all put BACK IN ITS RIGHTFUL PLACE!! judge


giveup
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Fri 30 Oct 2015, 19:45

This flaming ceiling saga is STILL ongoing ...  Started back in July! ... I'm still waiting for them to come and complete the job - properly.  Still finding bits of plaster in the weirdest of places - and splashes of paint on treasured items and furniture - there's even a paint blob on top of the flat screen TV!   Grrrrrrrrrrrrrrr
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Fri 13 Nov 2015, 12:33

Not sure whether this warrants going under the 'Here we go again' thread or not .... Hoping it's 'not'  rock
- but back in the old waiting game again:  Friday the 13th not the best of days to be going to the doc - especially under 'emergency' circumstances - but those are the very circumstances I found myself in this morning - resulting in an urgent request being made by my GP for an 'emergency appointment' at the Cancer Department  afraid of St Mary's Hospital (yes, yet again a different flamin' hospital and different flamin' specialists etc etc etc ....).  Anyway, I won't know any more until after this appointment has been made and the proposed 'exploratory procedure'  wary has been done there ....
All different stages of the Waiting Game ....  never ending ........
avatar
Whiskers
VIP Member
VIP Member

Posts : 1447
Likes received : 7
Join date : 2011-04-02

Re: Kitkat's KK Blog

Post by Whiskers on Fri 13 Nov 2015, 15:29

Kitkat wrote:Not sure whether this warrants going under the 'Here we go again' thread or not .... Hoping it's 'not'  rock
- but back in the old waiting game again:  Friday the 13th not the best of days to be going to the doc - especially under 'emergency' circumstances - but those are the very circumstances I found myself in this morning - resulting in an urgent request being made by my GP for an 'emergency appointment' at the Cancer Department  afraid of St Mary's Hospital (yes, yet again a different flamin' hospital and different flamin' specialists etc etc etc ....).  Anyway, I won't know any more until after this appointment has been made and the proposed 'exploratory procedure'  wary has been done there ....
All different stages of the Waiting Game ....  never ending ........

Hope its not as serious as it sounds Kitkat.  I think I remember Friday 13th ended up a lucky date for you before.
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Sat 14 Nov 2015, 16:47

Whiskers wrote:I think I remember Friday 13th ended up a lucky date for you before.

lol Whiskers ....  your memory is better than mine! ...  In that case, then I hope it's a sign .... giggle  (a good one though!)

Edit: wary  Fingers crossed, it'll turn out to be the exception mentioned here:
https://krazykats.forumotion.co.uk/t745-friday-the-13th-13-facts-about-the-unluckiest-day-in-the-calendar#5356
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Mon 16 Nov 2015, 13:52

I just found my driving licence. Embarassed ... the original one that I thought might have been inside the Blue Badge holder that was stolen.  I obviously must have realised at some stage that it wasn't such a sensible place to keep it.  Found it now in a compartment of a bag that I haven't used for a while, together with spare key to the car (which I had also forgotten where I had put that - a separate thing though, because I wouldn't have been that stupid to leave the spare key in the car! cheesy )
So, I paid out £20 to get a replacement licence - all for nothing!  Small consolation (I suppose) is the knowledge that perhaps I'm not the only one that this has happened to, as when I got my replacement licence it stipulated that the original one must be destroyed if ever found.  I'm also relieved to know that my driving licence hasn't ended up in the hands of some unscrupulous people, as that little card (which contains your full address, date of birth, photo and signature) could well be implemented in identity fraud - or worse!
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Wed 16 Dec 2015, 15:01

Extract from the Newsletter from the Work and Benefits website out today:

(PIP Assessment is the one I had with Atos last week (where initially the letter told me the appointment for my Atos Medical Assessment was to be in Milton Keynes (about 65 miles away from where I live) at 9am !   I phoned them as soon as I received the letter to have it changed to somewhere nearer - I know there are places nearer, because when I had my ESA medical with Atos it was just down the road! I am currently awaiting the dreaded brown envelope ... they say the average time to expect this is between 4-8 weeks from date of the Assessment
- and  the ESA is the other one that I appealed against their initial decision and won my appeal at Tribunal), which according to this, looks like a reassessment is looming on the horizon)
   scared

Dear Reader,

Welcome to our final, brief newsletter before Christmas. We’ll be back again on Wednesday 13 January.

In this edition we reveal that the DWP is planning to make it much harder for claimants who need aids and adaptations to get an award of PIP. As many as 35% of claimants who currently get an award of the daily living component could miss out in the future.

The move by the DWP is partly due to the fact that claimants are winning a shocking 6 out of 10 PIP appeals, the latest figures show.

Also in this edition, we have news that ESA reassessments have begun again after a break of almost two years.

PIP AWARDS TO BE SLASHED
The DWP is aiming to slash the number of people who are eligible for the daily living component of PIP. The cuts will be aimed at the 35% of claimants who qualify for PIP solely because of their use of aids and appliances.

Senior officials are unhappy that recent upper tribunal decisions have found that a bed, for example, can count as an aid or appliance if a claimant needs to sit on it in order to get dressed.

This, they say wasn’t the original intention when the benefit was introduced.

As a result the department has launched a brief consultation, ending on 29 January 2016, to decide how to change the system.

Possibilities include giving claimants who qualify for PIP on aids alone a single lump sum in the form of a voucher or giving them nothing at all.

The current PIP rules will continue to apply until any changes are made.

Any changes will only apply to current claimants when their eligibility is reassessed.

PIP APPEALS
The proportion of PIP appeals that are won by the claimant has risen to 60% according to the latest official figures.

This is in spite of the fact that all claimants wanting to appeal have to go through the mandatory reconsideration system, which was supposed to dramatically reduce both the number and percentage of successful appeals.

In reality, the proportion of PIP appeals won by the claimant has increased in every quarter since the benefit was introduced. The number of PIP appeals has also risen from 2,145 in July to September 2014 to 13,568 in the most recent quarter.

58% of ESA appeals are also successful, with numbers rising by 26% in a year, to 13,020 in the most recent quarter.

ESA REASSESSMENTS TO START AGAIN
The DWP have begun the routine reassessment of ESA claimants, according to the Rightsnet forum, something which has not been done since January 2014.

The announcement means that even though Maximus is failing to meet its targets and is losing money on the work capability assessment contract, it apparently now has enough spare capacity to begin checking claimants already in receipt of ESA.

Whether this is only in certain areas of the country, or whether it is only a small proportion of those claimants due a reassessment, we don’t yet know.

HOW FAR TO YOUR PIP ASSESSMENT?

Thank you to everyone who has so far sent us information about how far they had to travel to their PIP assessment. We have had scores of emails, lots of comments and some Facebook posts on this issue, but we could still use more.

We’ll be writing up detailed information about what is happening, and why people are being sent such long distances, in the New Year.

FORUM CLOSURE
Our brilliant band of moderators will do their last session of the year on Christmas Eve and then reappear on Tuesday 5 January – so there’s still plenty of time to wish them a Happy Christmas!

IN THE NEXT EDITION
Well, we still haven’t heard from the Information Commissioner’s Office with a decision on our challenge to the DWP’s refusal to give us information about the secret reviews into the deaths of 49 claimants.

In fact, they aren’t even replying to our emails now. Maybe by the next edition . . . But, we’ll be off to the information tribunal if necessary - we’re not giving up.

In the next newsletter, however, we definitely will be piloting a new feature to help you get as much information as possible about your PIP assessment centre.

Until then, we wish you a peaceful Christmas and a brown envelope free New Year.

Good luck,

Steve Donnison
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Wed 06 Jan 2016, 21:11

(Copied over from Managing Pain thread):

Kitkat wrote:Now I can relax and just enjoy Christmas.

Spoke too soon.  Crying or Very sad    The dreaded 'brown envelope' arrived (surprisingly very quickly) - found it late yesterday evening when I got home and the content is not good.  I needed 12 points.  They gave me 10.  Those 2 points mean I lose the motability level in the transfer from DLA to PIP (from Enhanced which the DLA gave me -to 'Standard Mobility' even though there has been no change of circumstances, and that means after 19th January I will no longer have my car.  crybaby   I am gutted, devastated - but not really all that surprised, going by all the similar stories I have been hearing about.  I am entitled to request a mandatory review and if, as probably likely they respond by saying they will not change the decision - then ....  it's Appeal and Tribunal time again.  head-bang    That of course can be a long, stressful, drawn-out process and in the meantime I am without my lifeline.   pale

Lovely Christmas present - and of course their offices are closed now, till 29th, so I can't even ask for the review till then.  

There really, really is no end to it ...  You know the saying "Just when you think it's safe ... etc etc ..."   rock

Spent most of the day at hospital with my cousin who's been very ill since before Christmas. He was admitted into hospital today, where all agree is the best place for him to be at the moment where he can be monitored 24 hours and looked after properly and ensuring he gets the necessary nutrients etc while they carry out some investigative tests.

Arrived home (after being stuck right in the middle of the rush hour) to find a letter confirming that my Motability car must be returned by 9th February, as the assessment for the transition over to PIP decision left me 2 points short, even though I was on the highest Mobility of the DLA. I have asked for a Reconsideration review, which is my right - but because there's such a volume of people in the same situation it could be anything from 4-10 weeks or more before I get a decision as to whether they have reviewed in my favour or not. If I still haven't heard from them by 9th February the car has to go back by that date anyway. Even if I hear the day after that the decision has been reviewed, I would have to apply again for the Motability entitlement under a different contract - but cannot do that before a period of 6 months. It's no wonder so many people have committed suicide as a direct result of the transition from DLA over to PIP, or sanctions incurred in other areas of Disability.
(For details, see Callum's List - somewhere on this forum). Might be in this very thread, I'm not sure, need to check it out but I'm not really in the right frame of mind just now.
If I don't have use of the car I am completely stranded. Couldn't even go visit my cousin in the hospital, let alone get to my own hospital appointments. I am so stressed out at this moment in time ................
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Wed 06 Jan 2016, 21:45

Kitkat wrote:(For details, see Callum's List - somewhere on this forum). Might be in this very thread, I'm not sure, need to check it out but I'm not really in the right frame of mind just now.

Found it through the Search option. It's in the Health & Lifestyle section:

https://krazykats.forumotion.co.uk/t679-mps-call-for-esa-death-statistics-to-be-published
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Fri 15 Jan 2016, 23:09

My cousin is still in hospital. We had thought he might be coming home this weekend, but just been told that he's being transferred to another hospital tonight (St Mary's in Paddington) as he may have to have surgery. That's all I know till I go in there tomorrow morning. Another cousin (who is a nurse) is arriving from Ireland tomorrow. I'm so very pleased about that. She had already arranged to come before this latest news. Her timing couldn't have been better had it been planned so.
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Thu 04 Feb 2016, 11:28

I am officially a statistic now.   What a Face

Nearly 14,000 disabled people have mobility cars taken away
By Nikki Fox
Disability correspondent

3 February 2016

Nearly 14,000 disabled people who rely on a specialist motoring allowance have had their cars taken away from them following government welfare changes.
Figures seen by the BBC show almost half of those having to be reassessed for this support under the changes lost their Motability vehicle.
Many had been adapted to meet their owners' needs and campaigners warn it could lead to a loss of independence.
But the government says the new process is fairer and people can appeal.
More than 650,000 people currently use the Motability Scheme, which allows disabled people to lease a new car, scooter or powered wheelchair using their government-funded mobility allowance.
The scheme also helps towards the cost of adaptations - such as a hoist for a wheelchair or hand controls - that the individual requires.

Face-to-face


Until recently, anyone receiving the highest rate of the "mobility component" of Disability Living Allowance (DLA) was eligible for the scheme.
However, as part of Department for Work and Pensions welfare changes, the Personal Independence Payment (PIP) began replacing DLA from April 2013.
Under DLA, most people completed their own application form and did not have to reapply once entered into the scheme.
With PIPs, everyone - new applicants and those already in receipt of DLA - will have to attend a face-to-face assessment by government-hired private companies, and only those scoring 12 points or more will qualify for support - currently £57.45 per week.
To date, Motability has seen around 51,200 people join the scheme using PIP.
Of those previously on higher rate DLA, 31,200 people have so far been reassessed for PIP, and of those, 55% - or 17,300 - have kept their car.
But the remaining 45% - 13,900 people - have lost the higher rate and therefore their car as well.


'She hadn't got a clue'


Despite being an amputee with spina bifida, who is only able to take a few steps, Christine Mitchell did not score the points she needed to keep her Motability car.
She appealed and eventually won, but is extremely critical of the reassessment process.
"I explained to the lady in detail that I wasn't able to walk. She asked me how far I could walk, and there was a filing cabinet that was maybe 3ft away, and I said I could possibly walk that far.
"It was so frustrating. I looked at my husband and I was near enough in tears because I couldn't make her understand.

"She hadn't got a clue what spina bifida was."


Some 360,000 people will eventually undergo PIP reassessments, including those currently on an "indefinite" or "lifetime" DLA award.
Disabled children will continue to receive DLA until they reach the age of 16 and those who were aged 65 or over on 8 April 2013 are also unaffected.
Liz Sayce, chief executive of Disability Rights UK, told the BBC "being disabled costs money".
"The Personal Independence Payment is supposed to help with those costs, but many people are being denied the benefit because they are not assessed properly.
"Sometimes that means people lose their cars; a massive blow which impacts on their ability to remain independent, take part in their communities or get and keep a job."

The government hopes to save £2bn as a result of the switch from DLA to PIPs.

http://www.bbc.co.uk/news/uk-35476904



The crux of the matter:  "The government hopes to save £2bn as a result of the switch from DLA to PIPs."


Minister for Disabled People Justin Tomlinson said people's circumstances changed over time and it was right they should be reassessed.

"But rightly we have a system that allows for an appeal, a mandatory reconsideration and then if they're not satisfied with that they can go for an independent appeal, so there are lots of opportunities if a claimant thinks a decision is wrong to have that looked at again."
Latest figures show that of all the appeals to do with PIP, 60% have found in the claimant's favour.
Motability says it provides a support package, including a £2,000 grant, to anyone forced to leave the scheme following a PIP reassessment.
The charity added: "This helps individuals to remain mobile, in many cases by purchasing a used car. Motability has already provided some £16m in support through this transitional package."


(The "support package" which Motability says it provides only covers those who have been in the scheme for many years, i.e. 'indefinite claimants').  Additionally, they have to wait a period of 6 months before reapplying to join the scheme.

The report also doesn't say that once the decision has been made the car must be returned to Motability anyway with a deadline of 4 weeks.  The "mandatory reconsideration" is merely a formality which they are now forced to offer to people and which must be requested within one month of the decision and you cannot appeal independently unless you have first requested a mandatory reconsideration.  The average wait for the decision on this 'mandatory reconsideration' is 16 weeks - in which time you have had to return the car whether the decision is received or not - and once received anyway it will just say "No change from the original decision".

It's ALL a constructed plan to save money - at the expense and misery of the most vulnerable in society, those who are unable to defend, as already physically and mentally stressed by the whole process - the daunting prospect of defending their rights deliberately made as difficult as possible in the hope that as many people as possible will simply give up not having the strength or the ability to cope with the further stress ... the hope is that as many as possible will either give up - or die. ( Callum's List )
The lengthy, multi-paged letter that they send you detailing how your points were scored (or not)
- (I was given 10 points -  12 needed to remain in the higher mobility bracket) is sent to you in duplicate.  They say in the letter this is supplied to you to send as part of your Tribunal Appeal should you wish to appeal, as the law requires that those full details are required to be provided at any Tribunal.
avatar
Feather
VIP Member
VIP Member

Posts : 1316
Likes received : 26
Join date : 2011-03-25
Location : Scotland

Re: Kitkat's KK Blog

Post by Feather on Thu 04 Feb 2016, 11:42

I don't know why I'm replying to that, kk. There is no reply except to register utter disgust. There are so many other ways than this that the government could save money. It is totally unjustifiable. How can anyone defend such a callous policy?



I'D RATHER PURR THAN HISS!  
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Thu 04 Feb 2016, 13:21

Feather, I have PM'd you.
avatar
Whiskers
VIP Member
VIP Member

Posts : 1447
Likes received : 7
Join date : 2011-04-02

Re: Kitkat's KK Blog

Post by Whiskers on Thu 04 Feb 2016, 22:36

They are seriously frightening statistics. And its hitting the wrong people. The ones that are suffering are the ones that are genuinely in need and it doesnt affect the con artists because they know how to beat the system.  The whole system stinks.
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Mon 08 Feb 2016, 12:52

Well, today is the deadline for when Missy (my little car) has to be returned to Motability (due to the change from DLA to PIP, where I was short of 2 vital points to remain in the higher bracket for mobility).   As I had anticipated, the Mandatory Request for Reconsideration came back as 'decision unchanged'.
In order to avoid a further situation of untold misery and abject despair, I have now bought the car outright and so can hang on to my lifeline and still remain mobile. As from today little Missy belongs to me and my independence (and sanity) remains intact.

The Motability people confirmed to me that I am not alone in this dreadful situation - and that thousands of people are now in the same boat - even though it is through no fault of their own and their circumstances have not changed in any way.  I am told (by Motability) that the sole reason this has come about is because of the introduction of a change in the rules by the DWP (in other words - the goalposts have been moved ...).  The Motability spokesman reminded me that I can appeal this decision and in fact recommended that I do so.  Initially that was my intention, having expected that things would turn out this way - but to be realistic, after all the stress that this has already brought about, and knowing full well the further stress the Appeal/Tribunal situation would involve, as things stand I really don't feel at this stage I could cope with it all.  I have neither the physical nor mental strength necessary right now to go down that road - there are other things in my life taking priority and for which a reserve of that strength is needed.  So, that's how it is .... for the time being anyway ....
avatar
Feather
VIP Member
VIP Member

Posts : 1316
Likes received : 26
Join date : 2011-03-25
Location : Scotland

Re: Kitkat's KK Blog

Post by Feather on Mon 08 Feb 2016, 13:10

As you know, stress can do untold harm to the body. The main thing is you still have Missy. Things could be so much worse.I'm glad for you, kk.



I'D RATHER PURR THAN HISS!  
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Mon 08 Feb 2016, 17:22

Feather wrote:As you know, stress can do untold harm to the body. The main thing is you still have Missy. Things could be so much worse.I'm glad for you, kk.

Absolutely!  And you know what .... The 'Thought For The Day' which has just come into my Inbox and which has been posted up in the 'Food For Thought' section on LAL for today [ Live Life Fully ] absolutely seals that sentiment and tells me that I am indeed doing what is right for me in all the circumstances at this moment in time.  Very Happy
avatar
Whiskers
VIP Member
VIP Member

Posts : 1447
Likes received : 7
Join date : 2011-04-02

Re: Kitkat's KK Blog

Post by Whiskers on Mon 08 Feb 2016, 20:00

Nice one kk.  I know how much that independence means to you.  You've been through so much to get this far. you need to relax a bit now. xx
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Wed 10 Feb 2016, 18:37

Met two friends for lunch today in a Lebanese restaurant.  This is how my coffee arrived, served by a gorgeous Lebanese hunk:

https://www.dropbox.com/s/4nfqk6fhdep6k5k/Coffee.jpg?dl=0 Very Happy

I can't work out how to get the picture up here.  You need to click the link to see it.
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Mon 22 Feb 2016, 14:20

Saw doc this morning - as bleeding again, frequent migraines recently and also when I wake up in the mornings both my hands are completely numb!  I can't feel them at all!  After about a minute or so the feeling gradually comes back, but my hands now are quite painful throughout the day.

BP very high, and it seems I am anaemic too.  (Apparently I was back in July before the pericardial effusion (my stay in hospital).  Possibly low in vitamin D too. 
Seems they could well be things related to diabetes.  This was a different GP again - one that I've not seen before.  He said he reluctant to give me higher dosage of BP tablets (I'm on a pretty low dose at the moment) until the blood check is done.  I said I'm reluctant to be taking any of those things at all! head-bang  

Have to have a fasting blood check on Thursday, with a whole pile of things: 
(Not quite sure what they all mean, but looks similar to the one I had back in July) wary

CRP
FBC
FERRITIN
IFCC HbA 1C
LIVER PROFILE (LFT)
LIPIDS (FASTING)
TSH (TFT)
RENAL PROFILE (U&E)
VITAMIN D (25-Hydroxy)

As far as the bleeding is concerned, I spoke on phone with the Open Access Follow Up at Charing Cross Hospital. (This is a direct After-Breast-Cancer-Care team where I now have a support worker and they can arrange for me to see my Oncologist without having to wait to be referred by the GP - or speak with a specialist over the phone etc).
She asked if I would like to have an appointment now with Oncologist, but I said I would wait till I got the results from the GP blood test first, then contact them.  I did say that I [vehemently] hoped that it would not mean having to have another one of those nightmare hysteroscopies.  Evil or Very Mad  hairpull   If there's any way possible they can check things in some other way - I think I will just refuse point blank to go through that for a third time.
avatar
Feather
VIP Member
VIP Member

Posts : 1316
Likes received : 26
Join date : 2011-03-25
Location : Scotland

Re: Kitkat's KK Blog

Post by Feather on Mon 22 Feb 2016, 21:30

O, Cathy,you don't have your sorrows to seek. That's a lot of ailments to be suffering from. You must be worried and that's not good for BP. I wish I could give you a big hug--not that it would do much good. I always get more frequent migraines when my BP is too high. Your numb hands sounds like it may be a circulation problem but, if so, i'd have thought your feet would be affected too. My brother has Type 2 Diabetes and he has little feeling in his feet.Anaemia can result in many nasty symptoms but it's easily cured.Extreme tiredness is just one of them.Any lack of vitamins will do the same. You likely already know that the blood test before eating is to test cholesterol.
Last time you had the bleeding, didn't it turn out to be nothing serious?

Sorry to be so long winded. I hope you have someone near you that you can talk to. Explaining how I feel always makes me feel a bit better. xxx.



I'D RATHER PURR THAN HISS!  
avatar
Curious
Just can't stay away
Just can't stay away

Posts : 77
Likes received : 1
Join date : 2015-11-06
Location : Canada

Re: Kitkat's KK Blog

Post by Curious on Mon 22 Feb 2016, 22:06

KitKat, am sending you Love and Light, flower
avatar
Kitkat
Admin Kat
Admin Kat

Posts : 3774
Likes received : 39
Join date : 2011-03-19
Location : Around the bend

Re: Kitkat's KK Blog

Post by Kitkat on Tue 23 Feb 2016, 11:13

Oh yes, I forgot to add Tinnitus to that.  scared   Recently started, it doesn't actually bother me on its own, as I can control it - but could well be related to whatever else is wrong.  Wouldn't surprise me if it was actually some medication that's actually causing all this ....

Thanks, Feather and Curious, for your kind and sympathetic thoughts. sunny

Yes Feather - at the last hysteroscopy they discovered and got rid of a polyp, which they reckoned must've been the cause of the bleeding in the first place - but as I am now anaemic and the bleeding is obviously still happening, it seems now unlikely that that tiny little polyp was the cause after all and the root cause must lie somewhere else.
This blood test could well turn up something that might have been missed before.  (Different doc - different approach, perhaps).

    Current date/time is Sun 16 Dec 2018, 16:16